ALAN Maladies Rares Luxembourg asbl, the national rare disease alliance of Luxemburg is pleased with the importance given to health and health care by the EU Commission which is illustrated by the unprecedented budget of the current EU4Health Program. Furthermore, we welcome the broad scope of objectives which covers multiple areas which are key for the rare disease community.
AMR
ALAN Maladies Rares Luxembourg
NGO · Luxembourg · EU Transparency Register 961973546240-11
1
position filed
in the 326 files tracked
1
legislative file
of 326 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 784 non-governmental organisations on this site, they rank #453 by legislative files engaged — a count of participation, not a measure of influence.
0.1
declared lobbying FTE
self-declared
< €10K
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2022
in the register since
Declares membership of
- EURORDIS
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).
- Register category
- Non-governmental organisations
- Registered as
- ALAN asbl-Maladies Rares Luxembourg (ALAN)
- Head office
- Kockelscheuer, Luxembourg
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
ALAN Maladies Rares Luxembourg filed 1 position on 8 Jan 2024, across 1 of the 326 legislative files tracked here.
What they argued
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.