Childhood Cancer International Europe (CCI Europe) represents childhood cancer organisations, including parents and survivors groups, across Europe. Over the last decades, medicine development for specific childhood cancer indications, First-in-Child (FiC), has significantly stalled compared to adult anticancer medicines, even in contrast to rare types of adult cancer.
CCI
Childhood Cancer International - Europe
NGO · Austria · EU Transparency Register 682126441400-50
5
positions filed
in the 326 files tracked
4
legislative files
of 326 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 784 non-governmental organisations on this site, they rank #137 by legislative files engaged — a count of participation, not a measure of influence.
8
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
2
EP accreditations
as declared to the register
2021
in the register since
Declares membership of
- WeCAN https://wecanadvocate.eu/
- ECO Patient Advisory Committee https://www.europeancancer.org/
- EURORDIS https://www.eurordis.org/
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).
- Register category
- Non-governmental organisations
- Registered as
- CCI Europe (CCI Europe)
- Head office
- Wien, Austria
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Childhood Cancer International - Europe filed 5 positions between 4 Jan 2024 and 2 Jun 2026, across 4 of the 326 legislative files tracked here, attaching a full position paper 2 times.
2024 · 1 filed2025 · 3 filed2026 · 1 filed
What they argued
Paediatric oncology is a field that has yet to reach its full potential. The creation of a legal framework for biotechs, within a truly Single Market, holds the potential to support transformative research, improve treatments, and ultimately help cure more children affected by cancer.
Childhood Cancer International Europe (CCI Europe, CCI-E) is the largest pan-European childhood cancer parents and survivors organisation. We represent childhood cancer parents and survivors groups and other childhood cancer organisations. Paediatric cancer is the leading cause of death by disease in Europe for children over 1 year, and two-thirds of survivors suffer from late effects caused by toxic treatments.
Childhood Cancer International Europe (CCI Europe), the biggest pan-European childhood cancer parents and survivors organisation, welcomes the Commissions efforts to simplify and strengthen the EU budget performance framework. Simplification is necessary, but it must not come at the cost of visibility for high-impact areas that represent the EUs greatest added value.
Childhood Cancer International Europe (CCI-E), the biggest pan-European childhood cancer patients, parents and survivors organisation, welcomes the EU4Health programme as one of the main instruments to pave the way to a European Health Union, and to improve the health of EU citizens, especially children and adolescents with cancer.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.
- Wirtschaftskammer Österreich · 3 files in common
- KickCancer · 3 files in common
- Eurogroup for Animals · 2 files in common
- Centre National de la Recherche Scientifique (CNRS) · 2 files in common
- VTT Technical Research Centre of Finland · 2 files in common
Showing 5 of 17.
Is this your organization?
Everything on this page comes from Childhood Cancer International - Europe’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.