Childhood Cancer International - Europe (CCI Europe), the biggest pan-European childhood cancer parents and survivors organisation, welcomes the opportunity to contribute to this consultation. Europes competitiveness must be underpinned by a healthy, skilled and resilient population, and by an innovation ecosystem that addresses areas of unmet need.
CCI
Childhood Cancer International - Europe
NGO · Belgium · EU Transparency Register 682126441400-50
10
positions filed
in the 665 files tracked
6
legislative files
of 665 tracked
6
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,774 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1106 non-governmental organisations on this site, they rank #203 by legislative files engaged, a count of participation, not a measure of influence.
8.8
declared lobbying FTE
self-declared
–
declared costs / yr (floor)
2
EP accreditations
as declared to the register
2021
in the register since
Declares membership of
- WeCAN https://wecanadvocate.eu/
- ECO Patient Advisory Committee https://www.europeancancer.org/
- EURORDIS https://www.eurordis.org/
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026).
- Register category
- Non-governmental organisations
- Registered as
- CCI Europe (CCI Europe)
- Head office
- Wien, Austria
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Childhood Cancer International - Europe filed 10 positions between 27 Apr 2021 and 2 Jun 2026, across 6 of the 665 legislative files tracked here, attaching a full position paper 6 times.
2021 · 1 filed2023 · 3 filed2024 · 1 filed2025 · 4 filed2026 · 1 filed
What they argued
Childhood Cancer International Europe (CCI-E), the largest European patients organisation in paediatric cancer, welcomes the proposal by the European Commission for revision of the EU Pharmaceutical legislation as it addresses several areas of concern of the paediatric cancer community.
Childhood Cancer International Europe (CCI-E), the largest European patients organisation in paediatric cancer, has been involved in the review of the EU Paediatric and Orphan Regulations since 2012. We welcome the proposal by the Commission for revision of the EU Pharmaceutical legislation as it covers some areas of concern of the paediatric cancer community.
Childhood Cancer International Europe (CCI Europe), the largest European patient organisation in paediatric cancer, has been involved in the review and analysis process of the EU Paediatric Regulation since 2012 and the EU Orphan Regulation since 2016.
CCI-Europe is thankful for the opportunity to give feedback on the revision of the EU General Pharmaceutical Legislation. CCI-Europe is the biggest pan- European childhood cancer parents’, survivors’ and patient representatives’ organisation (66 organisations in 33 European countries) that advocates patient-centred treatments and research via inclusion, collaboration and transparency.
Childhood Cancer International Europe (CCI Europe) represents childhood cancer organisations, including parents and survivors groups, across Europe. Over the last decades, medicine development for specific childhood cancer indications, First-in-Child (FiC), has significantly stalled compared to adult anticancer medicines, even in contrast to rare types of adult cancer.
Paediatric oncology is a field that has yet to reach its full potential. The creation of a legal framework for biotechs, within a truly Single Market, holds the potential to support transformative research, improve treatments, and ultimately help cure more children affected by cancer.
Childhood Cancer International Europe (CCI Europe, CCI-E) is the largest pan-European childhood cancer parents and survivors organisation. We represent childhood cancer parents and survivors groups and other childhood cancer organisations. Paediatric cancer is the leading cause of death by disease in Europe for children over 1 year, and two-thirds of survivors suffer from late effects caused by toxic treatments.
Childhood Cancer International Europe (CCI Europe), the biggest pan-European childhood cancer parents and survivors organisation, welcomes the Commissions efforts to simplify and strengthen the EU budget performance framework. Simplification is necessary, but it must not come at the cost of visibility for high-impact areas that represent the EUs greatest added value.
Childhood Cancer International Europe (CCI-E), the biggest pan-European childhood cancer patients, parents and survivors organisation, welcomes the EU4Health programme as one of the main instruments to pave the way to a European Health Union, and to improve the health of EU citizens, especially children and adolescents with cancer.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.