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Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.

Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

3
files engaged
of 583 tracked
3
positions filed
in those 583 files
declared FTE
self-declared
EP accreditations
as declared to the register
ERS
17
files engaged
of 583 tracked
19
positions filed
in those 583 files
3
declared FTE
self-declared
3
EP accreditations
as declared to the register

Declared costs: €300K+ a year · in the register since 2012

Files both filed on (3)

Medicinal products for human use · A European Health Data Space · Revision of the EU legislation on medicines for children and rare diseases

Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.

What each said, in their own words

Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.

Medicinal products for human use

The Association of Innovative Pharmaceutical Industry · filed 27 Apr 2021 · source

The Association of Innovative Pharmaceutical Industry (AIFP) shares the EFPIA’s view expressed in its input into this Inception Impact Assessment. Further to this, we would like to stress some of our main concerns and observations. The European citizens expect to have equal access to safe, state-of-the-art and affordable innovative and established therapies.

European Respiratory Society · filed 27 Apr 2021 · source

ERS appreciates the opportunity to contribute to this roadmap on the revision of the General Pharmaceutical legislation (namely Directive 2001/83/EC1 and Regulation (EC) No 726/20042). Join the dots: Legislation must foster medical advancement not hamper it.

European Respiratory Society · filed 8 Nov 2023 · source

Answer to the request for feedback on the revision of the EU general pharmaceutical legislation The European Respiratory Society, (ERS) is one of the leading medical organisations in the respiratory field, with a growing membership spanning over 160 countries.

A European Health Data Space

The Association of Innovative Pharmaceutical Industry · filed 3 Feb 2021 · source

The Association of Innovative Pharmaceutical Industry (AIFP) shares the EFPIA’s view expressed in its input into this Inception Impact Assessment. Further to this, we would like to stress some of our main concerns and observations.

European Respiratory Society · filed 3 Feb 2021 · source

The European Respiratory Society appreciates the opportunity to input to the proposal on the European Health Data Space for better healthcare, research and policy-making. The COVID-19 pandemic has clearly shown the benefits that better sharing and use of health data could bring to healthcare in the EU.

European Respiratory Society · filed 25 Jul 2022 · source

The European Respiratory Society appreciates the opportunity to give feedback to the proposal on the European Health Data Space (EHDS) for better healthcare, research and policy-making. The COVID-19 pandemic has shown the need of electronic health data for the development of policy response to health emergencies, better preparedness of healthcare services and for fostering research and innovation.

Revision of the EU legislation on medicines for children and rare diseases

The Association of Innovative Pharmaceutical Industry · filed 6 Jan 2021 · source

The Association of Innovative Pharmaceutical Industry (AIFP) shares the EFPIA´s view expressed in its input into this Inception Impact Assessment. Further to this we would like to stress some of our main concerns and observations.

European Respiratory Society · filed 6 Jan 2021 · source

The European respiratory Society (ERS) is an international organisation that brings together physicians, healthcare professionals, scientists and other experts working in respiratory medicine. It is one of the leading medical organisations in the respiratory field, with a growing membership representing over 160 countries worldwide.

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