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Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.

Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

IP
Ipsen Pharma

Company · France

2
files engaged
of 583 tracked
2
positions filed
in those 583 files
0.2
declared FTE
self-declared
0
EP accreditations
as declared to the register

Declared costs: €100K+ a year · in the register since 2012

ERS
17
files engaged
of 583 tracked
19
positions filed
in those 583 files
3
declared FTE
self-declared
3
EP accreditations
as declared to the register

Declared costs: €300K+ a year · in the register since 2012

Files both filed on (2)

Medicinal products for human use · Revision of the EU legislation on medicines for children and rare diseases

Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.

What each said, in their own words

Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.

Medicinal products for human use

European Respiratory Society · filed 27 Apr 2021 · source

ERS appreciates the opportunity to contribute to this roadmap on the revision of the General Pharmaceutical legislation (namely Directive 2001/83/EC1 and Regulation (EC) No 726/20042). Join the dots: Legislation must foster medical advancement not hamper it.

Ipsen Pharma · filed 6 Nov 2023 · source

Ipsen, a global biopharmaceutical company committed to improving patients' lives through breakthrough innovations, focuses on unmet medical needs, particularly in oncology, rare diseases and neuroscience. We support the objectives of the reform but urge more ambition to foster innovation for people with rare diseases and improve Europes competitiveness and attractiveness.

European Respiratory Society · filed 8 Nov 2023 · source

Answer to the request for feedback on the revision of the EU general pharmaceutical legislation The European Respiratory Society, (ERS) is one of the leading medical organisations in the respiratory field, with a growing membership spanning over 160 countries.

Revision of the EU legislation on medicines for children and rare diseases

Ipsen Pharma · filed 6 Jan 2021 · source

As a global specialty-driven biopharmaceutical company committed to discovering new solutions for debilitating rare and ultra-rare diseases and improving quality of life for patients suffering from these diseases, Ipsen welcomes the opportunity to comment on the inception impact assessment.

European Respiratory Society · filed 6 Jan 2021 · source

The European respiratory Society (ERS) is an international organisation that brings together physicians, healthcare professionals, scientists and other experts working in respiratory medicine. It is one of the leading medical organisations in the respiratory field, with a growing membership representing over 160 countries worldwide.

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