NGO · Finland
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
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Sydänlapset ja -aikuiset ry filed 2 positions between 15 Sept 2025 and 19 May 2026, across 2 of the 687 legislative files tracked here.
Heart children and adults are a patient organisation of people with congenital heart failure and hereditary heart disease and their close relatives. The FMA’s activities target children, adolescents and adults with congenital heart disease, as well as persons and entities working with their family members and patient groups.
Filed in Finnish · English published by the European Commission
We express our support for the European Commission’s initiative to develop a Recommendation on cardiovascular health checks under the Safe Heart Plan. It is crucial that future cardiovascular health surveillance includes risk factors for key cardiovascular diseases. However, a model focusing solely on these factors would ignore those with hereditary and congenital arrhythmias and heart muscle disorders.
Filed in Finnish · English published by the European Commission
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Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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