Side by side
Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
NGO · France
Declared costs: €25K+ a year · in the register since 2021
NGO · Switzerland
Declared costs: €400K+ a year · in the register since 2016
Medicinal products for human use · European Health Data Space dataset descriptions
Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.
Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.
European Society for Medical Oncology (ESMO) · filed 27 Apr 2021 · source
Representing more than 25,000 oncology professionals from over 160 countries, ESMO welcomes this important consultation. In light of this, we recommend the following: 1. Ensure access: • HTA: ESMO believes that unifying HTA across Europe through joint clinical assessments will contribute to improving access to high quality medicines.
European Society for Medical Oncology (ESMO) · filed 27 Oct 2023 · source
The European Society for Medical Oncology (ESMO) is one of the leading professional organisations for medical oncology, with more than 33,000 members from over 170 countries. ESMO is committed to preventing new cancer cases, improving the quality of cancer care and promoting equal access to optimal treatments for all cancer patients.
UNICANCER · filed 8 Nov 2023 · source
Unicancer, the French hospital federation of comprehensive cancer centers, expresses its gratitude to the European Commission for the opportunity to provide feedback in the public consultation on the legislative proposal for revising the EUs legislation on pharmaceuticals. While we welcome the proposal, we have five specific comments which we have integrated in the attached contribution: 1.
European Society for Medical Oncology (ESMO) · filed 8 Nov 2023 · source
The European Society for Medical Oncologys (ESMO) Rare Cancers Working Group (RCWG) is a multi-stakeholder partnership which brings together scientific societies, patient and research organisations, healthcare and education providers, and industry.
UNICANCER · filed 11 May 2026 · source
Out of the 180 HealthDCAT-AP properties reviewed in the Detailed Review sheet, 34 are recommended for inclusion in the minimum metadata set for data owners.The position is structured around six guiding principles : 1. Prefer controlled vocabularies over free text.
European Society for Medical Oncology (ESMO) · filed 12 May 2026 · source
The European Society for Medical Oncology (ESMO), representing over 50,000 members globally, welcomes the publication of the draft Implementing Act laying down the minimum metadata elements and their characteristics to be provided by health data holders for dataset descriptions for the secondary use of electronic health data under the European Health Data Space (EHDS) Regulation.
2 organizations on one sheet: every file each filed on, their register declarations, and a working link to each submission. Free: we ask for your name and email, and PolicySpeak may contact you about the product (privacy policy). The per-file record stays downloadable without signing up on each file’s page.