Side by side
Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
NGO · France
Declared costs: €25K+ a year · in the register since 2021
Industry association · Belgium
Declared costs: €800K+ a year · in the register since 2009
Medicinal products for human use · European Health Data Space dataset descriptions
Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.
Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.
European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) · filed 27 Apr 2021 · source
EUCOPE is the voice of small to midsize innovative companies active in the field of pharmaceuticals and medical technologies at the European level. The COVID-19 pandemic has again made the vital importance of the European pharmaceutical sector apparent, and while regulatory simplification is welcomed, broader business incentives should also be considered to address the EU’s competitiveness.
European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) · filed 5 Sept 2023 · source
EUCOPE acknowledges the objectives of the review. While numerous regulatory provisions will streamline the functioning of the market, changes to the incentive framework outweigh these, weakening EU global competitiveness.
European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) · filed 5 Sept 2023 · source
EUCOPE acknowledges the objectives of the Pharmaceutical Package, and welcomes maintaining a separate Directive and Regulation for decentralized and central approval processes. While we appreciate streamlining and digitisation of regulatory procedures, we are concerned that other proposed provisions will undermine R&D, innovation, EU competitiveness, and be particularly detrimental for patients and small and…
UNICANCER · filed 8 Nov 2023 · source
Unicancer, the French hospital federation of comprehensive cancer centers, expresses its gratitude to the European Commission for the opportunity to provide feedback in the public consultation on the legislative proposal for revising the EUs legislation on pharmaceuticals. While we welcome the proposal, we have five specific comments which we have integrated in the attached contribution: 1.
UNICANCER · filed 11 May 2026 · source
Out of the 180 HealthDCAT-AP properties reviewed in the Detailed Review sheet, 34 are recommended for inclusion in the minimum metadata set for data owners.The position is structured around six guiding principles : 1. Prefer controlled vocabularies over free text.
European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) · filed 12 May 2026 · source
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) represents small and mid-sized innovative companies in the pharmaceutical, biotechnology and medical technology sectors across Europe. EUCOPE welcomes the opportunity to comment on the draft implementing regulation setting out minimum metadata elements and their characteristics for dataset descriptions required from health data holders under Article…
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