Side by side
Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
NGO · Belgium
Industry association · Belgium
Declared costs: €6M+ a year · in the register since 2009
A European Health Data Space · Health Checks for Cardiovascular diseases
Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.
Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.
IDF Europe · filed 3 Feb 2021 · source
IDF Europe is a pan-European not-for-profit organisation, representing people living with diabetes and healthcare professionals in 70 associations across 44 countries in Europe. Diabetes is an incurable and complex disease, which currently affects more than 33 million people across the European Union.
EFPIA · filed 3 Feb 2021 · source
EFPIA welcomes the proposal to create sectoral and horizontal legislative frameworks to unlock the value of data, support the use, re-use and exchange of health data at the EU level and ensure coherence between the operation of the different legislations contributing to the functioning of the Data Space.
EFPIA · filed 28 Jul 2022 · source
The legislative proposal on a European Health Data Space (EHDS) and respective horizontal proposals provide an unprecedented opportunity to shape the future health data and digital ecosystem. Digital transformation has the potential to increase the innovation and productivity of the EU economy and ensure that Europe remains an innovator and world leader in the development and manufacture of medicines, supporting…
IDF Europe · filed 18 May 2026 · source
On behalf of the International Diabetes Federation Europe (IDF Europe), we welcome the opportunity to contribute to this important European Commission initiative. As recognised in the Safe Hearts Plan, cardiovascular diseases are closely linked with other major non-communicable diseases (NCDs), notably diabetes, obesity and chronic kidney disease.
EFPIA · filed 18 May 2026 · source
EFPIA welcomes the inclusion of EU-level targets in the Safe Hearts Plan and believes that the Council Recommendation (CR) should translate into even greater ambition at national level. CR should include a clear commitment that every person receives a comprehensive cardiometabolic risk assessment by age 35 (Know Your Numbers by 35), with regular reassessment thereafter.
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