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Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.

Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

2
files engaged
of 583 tracked
2
positions filed
in those 583 files
declared FTE
self-declared
EP accreditations
as declared to the register

Files both filed on (2)

Medicinal products for human use · A European Health Data Space

Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.

What each said, in their own words

Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.

Medicinal products for human use

MedTech Europe · filed 26 Apr 2021 · source

As the association representing the medical technology sector, MedTech Europe welcomes the recognition in the inception impact assessment that pharma health solutions bring about technological advances, and the inclusion of the potential of the digital transformation of health and care.

European Cancer Patient Coalition (ECPC) · filed 7 Nov 2023 · source

Regulatory Aspects ECPC welcomes the proposal to involve patients in the regulatory cycle of medicines, such as in the Committee for Medicinal Products for Human Use within the EMA. However, we recommend that the new EMA governance structure considers patient involvement throughout the whole development and evaluation cycle of new medicines in order to improve the outcomes and the implementation of the regulatory…

A European Health Data Space

European Cancer Patient Coalition (ECPC) · filed 2 Feb 2021 · source

The European Cancer Patient Coalition (ECPC) welcomes the initiative of the European Commission of setting up the European Health Data Space (EHDS) as a tool to strengthen cooperation, improve cancer research and ensure more equality for patients.

MedTech Europe · filed 3 Feb 2021 · source

MedTech Europe supports the project of the European Health Data Space (EHDS). The medtech industry is at the heart of the health data ecosystem. The industry’s digital health solutions annotate and enrich data to turn raw data into datasets of high value. Innovation in the development of new treatments and protocols is highly dependent on its ability to access and appropriately utilise health data.

MedTech Europe · filed 28 Jul 2022 · source

MedTech Europe welcomes the opportunity to provide feedback on the proposed European Health Data Space (EHDS) regulation, please find our full answer attached. • The EHDS regulation is meant to complement other EU laws, including existing sectoral and horizontal legislation.

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