Regulatory Aspects ECPC welcomes the proposal to involve patients in the regulatory cycle of medicines, such as in the Committee for Medicinal Products for Human Use within the EMA. However, we recommend that the new EMA governance structure considers patient involvement throughout the whole development and evaluation cycle of new medicines in order to improve the outcomes and the implementation of the regulatory…
ECP
European Cancer Patient Coalition (ECPC)
NGO · Belgium · EU Transparency Register 782811248337-11not in register snapshot
This register number is the organization’s own declaration on its submission. It is not in the 2 Sept 2026 snapshot of the EU Transparency Register, so we neither link to it nor use it to identify this organization.
2
positions filed
in the 583 files tracked
2
legislative files
of 583 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
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Their record over time
European Cancer Patient Coalition (ECPC) filed 2 positions between 2 Feb 2021 and 7 Nov 2023, across 2 of the 583 legislative files tracked here, attaching a full position paper 1 time.
2021 · 1 filed2023 · 1 filed
What they argued
The European Cancer Patient Coalition (ECPC) welcomes the initiative of the European Commission of setting up the European Health Data Space (EHDS) as a tool to strengthen cooperation, improve cancer research and ensure more equality for patients.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.
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