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Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.

Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

DCE
2
files engaged
of 583 tracked
2
positions filed
in those 583 files
12.2
declared FTE
self-declared
2
EP accreditations
as declared to the register

Declared costs: not declared · in the register since 2019

Files both filed on (2)

Medicinal products for human use · A European Health Data Space

Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.

What each said, in their own words

Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.

Medicinal products for human use

Digestive Cancers Europe · filed 27 Apr 2021 · source

Digestive Cancers Europe (DiCE), the European umbrella organisation representing patients with digestive cancer, welcomes the opportunity to provide feedback to the evaluation roadmap to the EU general pharmaceuticals legislation. We welcome the EC’s intentions to improve access to affordable medicines and enhance the existing provisions on access to biosimilar medicines.

BEUC - The European Consumer Organisation · filed 27 Apr 2021 · source

BEUC supports the European Commission’s initiative to evaluate and revise the general pharmaceutical legislation to improve access to medicines. We agree with the main gaps identified in the roadmap and corrective measures, but have additional recommendations. These are the most pressing issues and necessary changes for consumers: Unmet medical needs: Antimicrobial resistance is a global public health-threat.

BEUC - The European Consumer Organisation · filed 8 Nov 2023 · source

The European Commission proposal for a revised EUs pharmaceutical legislation is a step in the right direction as it includes recommendations from BEUC on ways to improve access to medicines in Europe. We strongly support measures to increase transparency on public funding for biomedical research, facilitate the development of medicines by non-profit entities, and enhance EU cooperation and action in the prevention…

A European Health Data Space

BEUC - The European Consumer Organisation · filed 3 Feb 2021 · source

BEUC, The European Consumer Organisation appreciates the opportunity to provide input to the European Commission’s ongoing evaluation of the need for a legislative proposal on a European Health Data Space. We consider that the evaluation provides a timely opportunity to ensure that sensitive data of European patients and consumers used for scientific advancements is well protected and serves societal interests.

Digestive Cancers Europe · filed 28 Jul 2022 · source

Digestive Cancers Europe (DiCE) applauds the European Commission for the proposal on European Health Data Space. DiCE believes that health data can improve health systems and advance research, especially in area of cancers such as digestive, where better diagnostic tools and treatment are urgently needed. In relation to EHDS we would like to share the following reflections. 1.

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