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Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.

Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

DCE
2
files engaged
of 583 tracked
2
positions filed
in those 583 files
12.2
declared FTE
self-declared
2
EP accreditations
as declared to the register

Declared costs: not declared · in the register since 2019

Files both filed on (2)

Medicinal products for human use · A European Health Data Space

Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.

What each said, in their own words

Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.

Medicinal products for human use

Digestive Cancers Europe · filed 27 Apr 2021 · source

Digestive Cancers Europe (DiCE), the European umbrella organisation representing patients with digestive cancer, welcomes the opportunity to provide feedback to the evaluation roadmap to the EU general pharmaceuticals legislation. We welcome the EC’s intentions to improve access to affordable medicines and enhance the existing provisions on access to biosimilar medicines.

American Chamber of Commerce to the EU · filed 27 Apr 2021 · source

The American Chamber of Commerce to the EU (AmCham EU) is committed to the development of a regulatory environment which furthers the capabilities of European healthcare, improving accessibility and ensuring a crisis-resistant medicines regulatory system.

American Chamber of Commerce to the EU · filed 6 Nov 2023 · source

Introduction To be truly future proof and innovation friendly, the EU's proposed pharmaceutical package must address the blocs declining attractiveness for investment. We therefore urge EU co-legislators to secure globally competitive incentives for research and development (R&D) and avoid additional unnecessary administrative burdens on companies.

American Chamber of Commerce to the EU · filed 6 Nov 2023 · source

Introduction To be truly future proof and innovation friendly, the EU's proposed pharmaceutical package must address the blocs declining attractiveness for investment. We therefore urge EU co-legislators to secure globally competitive incentives for research and development (R&D) and avoid additional unnecessary administrative burdens on companies.

A European Health Data Space

American Chamber of Commerce to the EU · filed 3 Feb 2021 · source

The American Chamber of Commerce to the European Union (AmCham EU) shares the European Commission’s view that EU-level action is required to address the fragmented environment of European health data, the lack of data available for (re-)use in scientific research and the need for increased uniformity in Member States’ applications of data regulations.

American Chamber of Commerce to the EU · filed 18 Jul 2022 · source

AmCham EU speaks for American companies committed to Europe on trade, investment and competitiveness issues. It aims to ensure a growth-orientated business and investment climate in Europe. AmCham EU facilitates the resolution of transatlantic issues that impact business and plays a role in creating better understanding of EU and US positions on business matters.

American Chamber of Commerce to the EU · filed 27 Jul 2022 · source

EuropaBio welcomes the European Commission’s bold ambition to make Europe the most competitive data economy globally. The power of data in the healthcare sphere is evident and realising the potential of healthcare data is a crucial step to ensure the EU is a leader in the development of next generational medicines.

Digestive Cancers Europe · filed 28 Jul 2022 · source

Digestive Cancers Europe (DiCE) applauds the European Commission for the proposal on European Health Data Space. DiCE believes that health data can improve health systems and advance research, especially in area of cancers such as digestive, where better diagnostic tools and treatment are urgently needed. In relation to EHDS we would like to share the following reflections. 1.

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