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aNewGovernance applauds the European Commission’s intention to create the European Health Data Space. The COVID-19 pandemic has the potential to be the catalyst to a long-awaited bold human-centered shift in the way we manage our Health, truly moving from sick-care to health-care (see document attached).

BEUC, The European Consumer Organisation appreciates the opportunity to provide input to the European Commission’s ongoing evaluation of the need for a legislative proposal on a European Health Data Space. We consider that the evaluation provides a timely opportunity to ensure that sensitive data of European patients and consumers used for scientific advancements is well protected and serves societal interests.

BEUC supports the general objective of enabling data access for the common good and the development of innovative services, provided that this is carried out following a “human-centric” approach and European values and fundamental rights are fully protected and respected. The consumer should always be able to decide who gets access to his or her personal data and under what conditions.

aNewGovernance welcomes the publication of the Data Governance Act. Following on our response to the overall EU Data Strategy, we support the European Commission’s actions encouraging data sharing and reuse, thus unlocking the yet unexploited financial and societal value of data. Building on our previous contributions, we would like to precise the following points: 1.