NGO · Spain
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts — staff, costs, accreditations — are not available for it.
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Federación Española de Enfermedades Raras filed 2 positions between 5 Jan 2021 and 3 Feb 2021, across 2 of the 583 legislative files tracked here, attaching a full position paper 1 time.
The Spanish Federation of Rare Diseases (ERDF), aligned with the European Alliance representing these diseases (EURORDIS), welcomes this consultation, recognising first of all the opportunity of this review for research and addressing this group.
Filed in Spanish · English published by the European Commission
The Spanish Federation of Rare Diseases (ERDF) would like to welcome the revision of this legislation and the recognition of the problem, giving a very positive assessment of this initiative. In line with the contributions of the European Rare Diseases Alliance (EURORDIS), and based on the experience of our associative fabric, we identify it as a priority for this new European regulation on orphan medicinal products…
Filed in Spanish · English published by the European Commission
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Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.
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