Side by side
Consultation participation and their own register declarations, side by side. Counts, not judgments — participation is not influence.
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
NGO · Portugal
Declared costs: not declared · in the register since 2016
Industry association · Belgium
Declared costs: €3.5M+ a year · in the register since 2011
A European Health Data Space · European data governance (Data Governance Act)
Register facts self-declared (snapshot 2 Sept 2026); cost bands are floors. Shared files are shared attention, not evidence of coordination.
Their opening passages on the files they share, verbatim and in filing order. We do not summarize, compare, or characterize positions — read them at source.
DIGITALEUROPE · filed 3 Feb 2021 · source
The EHDS Inception Impact Assessment sets out ambitious objectives linking together the need for secure and trusted health data sharing for what will be the creation of the first European data space. The EHDS has the potential to be the single market for digital health products and services, and the global centre of development of secure AI powered digital health.
ECHAlliance - European Connected Health Alliance · filed 4 Feb 2021 · source
The ECHAlliance is a global network of Digital Health Alliances that connects 78 countries in Europe, USA, Canada, China, Africa, Asia, the Caribbean and Americas and the Pacific, including stakeholders from government, health & social care providers, companies and start-ups, researchers, insurances, patient groups and citizens.
DIGITALEUROPE · filed 28 Jul 2022 · source
DIGITALEUROPE is a great supporter of the ambitions outlined in the Commission’s proposal for a regulation on the European Health Data Space (EHDS) which in our view is not a mere regulation but rather a holistic vision for the future of health and care for Europe. More effective use of health data is necessary to address diseases impacting often vulnerable communities.
DIGITALEUROPE · filed 31 Jul 2020 · source
Please find attached our detailed feedback. Summary: The future EU data spaces, as outlined in the Commission’s Data strategy, will be key to create a Single Market for data that will drive the EU’s digital transformation.
ECHAlliance - European Connected Health Alliance · filed 4 Feb 2021 · source
The ECHAlliance is a global network of Digital Health Alliances that connects 78 countries in Europe, USA, Canada, China, Africa, Asia, the Caribbean and Americas and the Pacific, including stakeholders from government, health & social care providers, companies and start-ups, researchers, insurances, patient groups and citizens.
DIGITALEUROPE · filed 8 Feb 2021 · source
DIGITALEUROPE welcomes the proposal for a Data Governance Act (DGA) and the possibility to provide feedback to the Commission. We are still finalising an in-depth analysis, but we already share below a set of early comments. Scope: The scope of the DGA needs to be clarified.
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