Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
ERN
the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions (ERN eUROGEN)
Academic / research · Netherlands · EU Transparency Register 240482147281-07
1
position filed
in the 655 files tracked
1
legislative file
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1096 non-governmental organisations on this site, they rank #1062 by legislative files engaged, a count of participation, not a measure of influence.
8
declared lobbying FTE
self-declared
–
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2022
in the register since
Declares membership of
- ERN eUROGEN is one of the 24 European Reference Networks of the European Commission.
- Collaboration Agreements have been signed with the following Supporting Partners:
- The European Association of Urology (EAU) – which started ERN eUROGEN
- The Ano-Rectal Malformations Consortium (ARM Net)
- The European Society for Pediatric Urology (ESPU)
- The European Paediatric Surgeons Association (EUPSA)
- International Society for the Study of Bladder Pain Syndrome (ESSIC)
- The International Continence Society (ICS)
- EURORDIS
Self-declared to the EU Transparency Register (snapshot 30 Sept 2026).
- Register category
- Non-governmental organisations
- Registered as
- ERN eUROGEN (ERN eUROGEN)
- Head office
- Nijmegen, Netherlands
Self-declared to the EU Transparency Register (snapshot 30 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions (ERN eUROGEN) filed 1 position on 23 Oct 2025, across 1 of the 655 legislative files tracked here, attaching a full position paper 1 time.
What they argued
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Everything on this page comes from the European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions (ERN eUROGEN)’s own submissions to the European Commission. We have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.