not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
2
positions filed
in the 655 files tracked
1
legislative file
of 655 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
Rigshospitalet, Denmark filed 2 positions between 4 Nov 2025 and 10 Nov 2025, across 1 of the 655 legislative files tracked here, attaching a full position paper 2 times.
The Honourable Ursula von der Leyen President of the European Commission Berlaymont Building Rue de la Loi 200 1049 Brussels, Belgium Date: November 10, 2025 Subject: plea for mentioning European Reference Networks in the MFF Dear President von der Leyen, As a member of the European Reference Network (ERN) on The European Rare Kidney Disease Reference Network I would like to underscore the profound and critical…
Filed in Danish · English published by the European Commission
Opening of the attached position paper · the full paper is on the Commission’s record (source link above)
Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care. The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
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