Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
RAD
Radboudumc
Academic / research · Netherlands
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
2
positions filed
in the 655 files tracked
1
legislative file
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
Radboudumc filed 2 positions between 20 Oct 2025 and 23 Oct 2025, across 1 of the 655 legislative files tracked here, attaching a full position paper 1 time.
What they argued
I would like to highlight the critical role of the European Reference Networks (ERNs) in addressing rare diseases across Europe. These networks form a cornerstone of European solidarity in healthcare by ensuring that patients with rare conditionsregardless of their geographical locationcan access the best available knowledge and expertise.
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