Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
LC
LMNA Cardiac
Other · Netherlands
identity not settledMore than one register entry could match this filer, so we have not linked it to any of them. The filings shown are those under this exact name.
2
positions filed
in the 655 files tracked
2
legislative files
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
LMNA Cardiac filed 2 positions between 10 Nov 2025 and 19 May 2026, across 2 of the 655 legislative files tracked here, attaching a full position paper 1 time.
2025 · 1 filed2026 · 1 filed
What they argued
The LMNA Cardiac Diseases Network strongly supports the European Commissions initiative on cardiovascular health checks and welcomes the development of a coordinated European approach to prevention, early detection, and improved cardiovascular care. For families affected by inherited cardiovascular diseases such as LMNA cardiomyopathy, early identification and monitoring can be life-saving.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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