We urge the European Commission to establish a ringfenced, standalone health budget that reflects the strategic importance of health to Europe's future. Epilepsy affects over six million people in Europe, with one in three being treatment resistant. The social and economic burden is profound, yet investment in epilepsy, especially in rare and complex forms, remains disproportionately low.
IBE
International Bureau for Epilepsy
NGO · Ireland · EU Transparency Register 708663999770-44
1
position filed
in the 655 files tracked
1
legislative file
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1096 non-governmental organisations on this site, they rank #941 by legislative files engaged, a count of participation, not a measure of influence.
0.2
declared lobbying FTE
self-declared
€100K+
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2025
in the register since
Declares membership of
- We are members of the European Patients' Forum
- European Federation of Neurological Associations
- OneNeurology Global Partnership and we co-lead Epilepsy Alliance Europe.
Self-declared to the EU Transparency Register (snapshot 30 Sept 2026).
- Register category
- Non-governmental organisations
- Head office
- Washington DC, United states
- EU office
- Dublin
Self-declared to the EU Transparency Register (snapshot 30 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
International Bureau for Epilepsy filed 1 position on 11 Nov 2025, across 1 of the 655 legislative files tracked here, attaching a full position paper 1 time.
What they argued
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.