Global Heart Hub, the international alliance of cardiovascular patient organisations, supports the Commission's initiative to revise the Medical Device Regulation (MDR) and In Vitro Diagnostic Regulation (IVDR) to reduce administrative burdens and enhance efficiency. However, we emphasize that simplification must not come at the expense of patient protection.
GHH
Global Heart Hub
NGO · Ireland · EU Transparency Register 919657145807-88
2
positions filed
in the 326 files tracked
2
legislative files
of 326 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 784 non-governmental organisations on this site, they rank #360 by legislative files engaged — a count of participation, not a measure of influence.
2.6
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
3
EP accreditations
as declared to the register
2022
in the register since
Declares membership of
- Asia-Pacific Cardiovascular Disease Alliance
- European Alliance for Cardiovascular Health (EACH)
- European Patients’ Forum (EPF) →
- The European FH Patient Networks (FH Europe)
- European Patients’ Academy on Therapeutic Innovation (EUPATI)
- International Council of Cardiovascular Prevention and Rehabilitation (ICCPR)
- International Cardio Alliance to Improve Disease Outcomes (iCardio)
- International Consortium for Health Outcomes Measurement (ICHOM)
- National Forum for Heart Disease & Stroke Prevention
- World Heart Federation
- World Patients Alliance
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).
- Register category
- Non-governmental organisations
- Head office
- Galway, Ireland
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
Track Global in PolicySpeak: request access →
Work at Global Heart Hub? so we know who speaks for it.
Their record over time
Global Heart Hub filed 2 positions between 6 Oct 2025 and 14 May 2026, across 2 of the 326 legislative files tracked here, attaching a full position paper 2 times.
2025 · 1 filed2026 · 1 filed
What they argued
Global Heart Hub (GHH) welcomes the opportunity to provide a patient-led perspective on the European Commissions initiative for health checks and early detection of cardiovascular diseases. We stand ready to contribute to its design, implementation, and monitoring.
Looking for an argument rather than an organization? Search every submission for a phrase and see everyone who used it.
Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.
- IDEE ECONOMICHE www.idee-economiche.it · 2 files in common
- MedTech Europe · 2 files in common
- EFPIA · 2 files in common
- Deutsche Sozialversicherung Europavertretung (DSV) · 2 files in common
- PHOENIX group · 2 files in common
Showing 5 of 25.
Is this your organization?
Everything on this page comes from Global Heart Hub’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.