As a neurologist working in Italy and an active member of the European Reference Network (ERN) on rare vascular diseases, I would like to express my deep concern about the absence of a dedicated health budget and the lack of explicit mention of ERNs in the proposed European Competitiveness Fund.
FII
Fondazione IRCCS Istituto Neurologico Carlo Besta
Academic / research · Italy
identity not settledMore than one register entry could match this filer, so we have not linked it to any of them. The filings shown are those under this exact name.
3
positions filed
in the 655 files tracked
1
legislative file
of 655 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
Fondazione IRCCS Istituto Neurologico Carlo Besta filed 3 positions between 27 Oct 2025 and 6 Nov 2025, across 1 of the 655 legislative files tracked here, attaching a full position paper 2 times.
What they argued
Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
Position Statement: Inclusion of European Reference Networks (ERNs) in the European Competitiveness Fund (ECF) I strongly recommend that the European Reference Networks (ERNs) be explicitly included and funded under the European Competitiveness Fund (ECF), particularly within Chapter V (Articles 3637) on Health, Biotech, Agriculture and Bioeconomy.
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