The European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) welcomes this opportunity provided by the European Commission to provide feedback on the revision of the EU general pharmaceuticals legislation.
EIP
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation
NGO · Belgium · EU Transparency Register 098968923496-04
1
position filed
in the 583 files tracked
1
legislative file
of 583 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 964 non-governmental organisations on this site, they rank #729 by legislative files engaged — a count of participation, not a measure of influence.
0.5
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2016
in the register since
Declares membership of
- ERN-LUNG (European Reference Network on Rare Pulmonary Diseases) covers a wide range of rare lung diseases and featur…
- EU-PFF is a member of EURORDIS.
- EU-PFF is a member of the EMA Patients' and Consumers' Working Party (PCWP)
- Liam Galvin
- a Board Member
- is also a member of the ELF Patient Advisory Committee.
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Non-governmental organisations
- Registered as
- European Pulmonary Fibrosis Federation (EU-PFF)
- Head office
- Overijse, Belgium
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation filed 1 position on 27 Apr 2021, across 1 of the 583 legislative files tracked here.
What they argued
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Everything on this page comes from European Idiopathic Pulmonary Fibrosis & Related Disorders Federation’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.