European Pulmonary Fibrosis Federation (EU-PFF) welcomes the opportunity to contribute to the discussion on the EUs next long-term budget and the proposed European Competitiveness Fund (ECF). This feedback aims to ensure that the unmet needs of people living with various forms of interstitial lung disease, including pulmonary fibrosis, which is a rare respiratory condition and in some cases with worse prognosis than…
EIP
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation
NGO · Belgium · EU Transparency Register 098968923496-04
2
positions filed
in the 665 files tracked
2
legislative files
of 665 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,800 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1107 non-governmental organisations on this site, they rank #610 by legislative files engaged, a count of participation, not a measure of influence.
0.5
declared lobbying FTE
self-declared
–
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2016
in the register since
Declares membership of
- ERN-LUNG (European Reference Network on Rare Pulmonary Diseases) covers a wide range of rare lung diseases and featur…
- EU-PFF is a member of EURORDIS.
- EU-PFF is a member of the EMA Patients' and Consumers' Working Party (PCWP)
- Liam Galvin
- a Board Member
- is also a member of the ELF Patient Advisory Committee.
Self-declared to the EU Transparency Register (snapshot 15 Oct 2026).
- Register category
- Non-governmental organisations
- Registered as
- European Pulmonary Fibrosis Federation (EU-PFF)
- Head office
- Overijse, Belgium
Self-declared to the EU Transparency Register (snapshot 15 Oct 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation filed 2 positions between 27 Apr 2021 and 12 Nov 2025, across 2 of the 665 legislative files tracked here.
2021 · 1 filed2025 · 1 filed
What they argued
The European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) welcomes this opportunity provided by the European Commission to provide feedback on the revision of the EU general pharmaceuticals legislation.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
Showing 5 of 20.
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Everything on this page comes from European Idiopathic Pulmonary Fibrosis & Related Disorders Federation’s own submissions to the European Commission. We have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.