This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
EGH
ERN GUARD-Heart
Academic / research · Netherlands
identity not settledMore than one register entry could match this filer, so we have not linked it to any of them. The filings shown are those under this exact name.
3
positions filed
in the 665 files tracked
1
legislative file
of 665 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,774 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
ERN GUARD-Heart filed 3 positions on 19 May 2026, across 1 of the 665 legislative files tracked here, attaching a full position paper 2 times.
What they argued
This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
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