This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
EGH
ERN GUARD-Heart
Academic / research · Netherlands
3
positions filed
in the 326 files tracked
1
legislative file
of 326 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
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Their record over time
ERN GUARD-Heart filed 3 positions on 19 May 2026, across 1 of the 326 legislative files tracked here, attaching a full position paper 2 times.
What they argued
This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
This submission is made by ERN GUARD-Heart on behalf of the European Coalition for Inherited, Congenital and Sudden-Death-Related Cardiovascular Disease Prevention: a voluntary, cross-border, multistakeholder collaboration of scientific societies, clinicians, researchers, patient advocates, patients, families and carers from across Europe and beyond.
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