Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
EG
ERN GENTURIS
Other · Germany
identity not settledMore than one register entry could match this filer, so we have not linked it to any of them. The filings shown are those under this exact name.
2
positions filed
in the 655 files tracked
2
legislative files
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
ERN GENTURIS filed 2 positions between 3 Feb 2021 and 11 Nov 2025, across 2 of the 655 legislative files tracked here, attaching a full position paper 1 time.
2021 · 1 filed2025 · 1 filed
What they argued
Governance – a shared vision based on trust • The 24 ERN registries should be one of the fundamental building blocks of the EHDS * The former UK ERN Full Members are part of the ERN Registries and should therefore have access as well • The ERN CG can build on the recent experience of setting up registries to actively work with the EC to create the EHDS - we would like to be involved in the development, discussions…
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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