Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
EE
Endo-ERN
Academic / research · Netherlands
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
2
positions filed
in the 655 files tracked
2
legislative files
of 655 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
Endo-ERN filed 2 positions between 3 Feb 2021 and 4 Nov 2025, across 2 of the 655 legislative files tracked here, attaching a full position paper 1 time.
2021 · 1 filed2025 · 1 filed
What they argued
Endo-ERN Response To Consultation On The EHDS In general we support the development of the EHDS and the ERNs should be involved in informing its development and implementation. By using platforms such as CPMS and rare disease registries, ERNs have first hand experience of using common platforms across a wide range of health care providers in several member states.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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