Skip to main content
PolicySpeak
← All files
ASV

ARVC-Selbsthilfe e.V.

NGO · Germany · EU Transparency Register 569004047856-53

2
positions filed
in the 326 files tracked
1
legislative file
of 326 tracked
0
with a full position paper
attached to a submission

Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

Who they are

Among the 784 non-governmental organisations on this site, they rank #429 by legislative files engaged — a count of participation, not a measure of influence.

1
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2022
in the register since

Declares membership of

  • ACHSE e.V. (https://www.achse-online.de)
  • Bundesverband Herzkranke Kinder e.V. (https://bvhk.de/)
  • DZHK-Patientenbeirat (https://dzhk.de/das-dzhk/struktur-und-gremien/patientenvertretung)
  • European Alliance for Cardiovascular Health EACH (https://www.cardiovascular-alliance.eu/)
  • European Patient Advocacy Group des ERN GUARD-Heart (https://guardheart.ern-net.eu/patients/epags/)
  • EURORDIS (https://www.eurordis.org/)
  • Global Heart Hub Cardiomyopathy Patient Council (https://globalhearthub.org/patient-councils/cardiomyopathy/)
  • Landes-Arbeitsgemeinschaft für kardiologische Prävention und Rehabilitation in Bayern e.V. (Herz-LAG Bayern) (https:/…
  • NAKOS (https://www.nakos.de/)
  • NATON (https://naton.network/)
  • Psychisch belastete Herzpatienten e.V. (https://herz-ohne-stress.de/)
  • SADS Deutschland e.V. (https://sads-deutschland.de/)
  • and 1 more

Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).

Register category
Non-governmental organisations
Head office
Unterschleissheim, Germany

Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.

Track ARVC-Selbsthilfe in PolicySpeak: request access →

Work at ARVC-Selbsthilfe e.V.? so we know who speaks for it.

Follow the file ARVC-Selbsthilfe e.V. engages with

One email on Tuesdays when a new position is filed on this file, from ARVC-Selbsthilfe e.V. or from anyone else on it. Only when there is something new.

We use your email for these updates, and PolicySpeak may contact you about the product. Unsubscribe in one click. Privacy policy.

Their record over time

ARVC-Selbsthilfe e.V. filed 2 positions between 16 May 2026 and 19 May 2026, across 1 of the 326 legislative files tracked here.

What they argued

Health Checks for Cardiovascular diseasesfiled 19 May 2026source

ARVC-Selbsthilfe e.V. Germany warmly welcomes the Safe Hearts Plan and the planned Cardiometric Health Checks. However, in our view, important elements are missing: health checks should not be limited to purely cardiometabolic examinations, but should also identify patients and families at risk of sudden cardiac death and genetic heart disease.

Filed in German · English published by the European Commission

Health Checks for Cardiovascular diseasesfiled 16 May 2026source

ARVC-Selbsthilfe e.V. Germany warmly welcomes the Safe Hearts Plan and the planned Cardiometric Health Checks. However, in our view, important elements are missing: health checks should not be limited to purely cardiometabolic examinations, but should also identify patients and families at risk of sudden cardiac death and genetic heart disease.

Filed in German · English published by the European Commission

Looking for an argument rather than an organization? Search every submission for a phrase and see everyone who used it.

Is this your organization?

Everything on this page comes from ARVC-Selbsthilfe e.V.’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.

Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.