I am responding as a Scientific Project Manager from Necker Hospital involved in the European Reference Network : ERN-Skin. Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns…
APH
APHP
Academic / research · France
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
2
positions filed
in the 655 files tracked
1
legislative file
of 655 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 655 consultation files tracked so far (56,999 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
APHP filed 2 positions on 5 Nov 2025, across 1 of the 655 legislative files tracked here.
What they argued
Dear Sir, dear Madam, On behalf of the patients who are affected by rare diseases, it is crucial to continue the CE's financial sustainability to promote research and improve patients' health, well-being and support. Rare diseases are affecting few people in %, thus the healthcare industry is not very enthousiastic in relation to the high research costs that will generate little revenue.
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