1/. In parallel with the revision of the EU general pharmaceutical legislation there is a revision of the EU legislation on Blood, Tissues and Cells (BTC). These two initiatives need to be harmonized. There are two major concerns with the proposed changes in the BTC legislation which both could have a major negative impact on the future safety and efficacy of advanced medicinal products based on genes, tissues or…
SCC
The Swedish Childhood Cancer Fund
NGO · Sweden · EU Transparency Register 561606225976-32
1
position filed
in the 665 files tracked
1
legislative file
of 665 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,800 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1107 non-governmental organisations on this site, they rank #1079 by legislative files engaged, a count of participation, not a measure of influence.
0.2
declared lobbying FTE
self-declared
–
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2017
in the register since
Declares membership of
- Kids Cancer - Act Now
- FORCE-Fostering Oncology Research by Charities in Europe
- REMEDi4ALL
- Childhood Cancer International Europe (CCI-E)
Self-declared to the EU Transparency Register (snapshot 15 Oct 2026).
- Register category
- Non-governmental organisations
- Head office
- Stockholm, Sweden
Self-declared to the EU Transparency Register (snapshot 15 Oct 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
The Swedish Childhood Cancer Fund filed 1 position on 27 Apr 2021, across 1 of the 665 legislative files tracked here.
What they argued
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.