The Thalassaemia International Federation represents a community of transfusion-dependent patients who rely on blood safety for their survival. We thus welcome the European Commission’s initiative to revise and update the Directive, especially with regard to the oversight of Member States in their respective practices to acquire adequate and safe blood supply.
TIF
Thalassaemia International Federation
NGO · Cyprus · EU Transparency Register 678285732160-11
1
position filed
in the 583 files tracked
1
legislative file
of 583 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 964 non-governmental organisations on this site, they rank #918 by legislative files engaged — a count of participation, not a measure of influence.
0.5
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2018
in the register since
Declares membership of
- https://thalassaemia.org.cy/who-we-are/collaborations/
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Non-governmental organisations
- Head office
- Nicosia, Cyprus
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Thalassaemia International Federation filed 1 position on 14 Dec 2020, across 1 of the 583 legislative files tracked here.
What they argued
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.