The PLATAFORMA DE ORGANIZACIONES DE PACIENTES (POP) welcomes the publication of the first draft Implementing Act (IA) under the European Health Data Space (EHDS) and acknowledges the key role of the EHDS Board in ensuring coherent, trustworthy and effective implementation of the Regulation across the EU.
Plataforma de Organizaciones de Pacientes. POP
NGO · Spain · EU Transparency Register 911317353003-19
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 784 non-governmental organisations on this site, they rank #693 by legislative files engaged — a count of participation, not a measure of influence.
Declares membership of
- https://plataformadepacientes.org/miembros
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).
- Register category
- Non-governmental organisations
- Registered as
- PLATAFORMA DE ORGANIZACIONES DE PACIENTES (POP)
- Head office
- MADRID, Spain
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Plataforma de Organizaciones de Pacientes. POP filed 1 position on 22 Dec 2025, across 1 of the 326 legislative files tracked here, attaching a full position paper 1 time.
What they argued
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Is this your organization?
Everything on this page comes from Plataforma de Organizaciones de Pacientes. POP’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.