The International Federation for Spina Bifida and Hydrocephalus (IF) welcomes the initiative of a European Disability Card. Addressing the barriers which persons with disabilities encounter when exercising the right to freedom of movement is vital.
IFS
International Federation for Spina Bifida and Hydrocephalus
NGO · Belgium · EU Transparency Register 718277924839-56
1
position filed
in the 583 files tracked
1
legislative file
of 583 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 964 non-governmental organisations on this site, they rank #813 by legislative files engaged — a count of participation, not a measure of influence.
5
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
1
EP accreditations
as declared to the register
2016
in the register since
Declares membership of
- IF is a member of
- European Patients Forum (EPF) →
- European Disability Forum (EDF
- also board membership)
- International Disability Alliance (IDA
- also Board membership)
- The European Organisation for Rare Diseases (EURORDIS)
- Food Fortification Initiative (FFI
- also Board membership)
- Rare Diseases International (RDI)
- International Disability and Development Consortium (IDDC) →
- Partnership for Maternal, Newborn and Child Health (PMNCH)
- and 6 more
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Non-governmental organisations
- Head office
- Brussels, Belgium
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
International Federation for Spina Bifida and Hydrocephalus filed 1 position on 9 Jan 2023, across 1 of the 583 legislative files tracked here.
What they argued
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Is this your organization?
Everything on this page comes from International Federation for Spina Bifida and Hydrocephalus’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.