The legislative proposal is overall suitable to address the existing barriers to the secondary use of health data at the national and European level. In particular, it should result in a reduction in the time required to access data in France and in a harmonization of the rules.
HDH
Health Data Hub
Public authority · France · EU Transparency Register 940632038561-64
1
position filed
in the 583 files tracked
1
legislative file
of 583 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 159 other organisations on this site, they rank #137 by legislative files engaged — a count of participation, not a measure of influence.
11.2
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2020
in the register since
Declares membership of
- HIMSS
- PariSanté Campus
- Filière IA et cancers
- Association RADAR
- APSSIS
- Participation NFDI4health : National Research Data Infrastructure for Personal Health Data (https://www.nfdi4health.de/)
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Other organisations
- Registered as
- Health Data Hub / Plateforme des données de santé (HDH)
- Head office
- Paris, France
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Health Data Hub filed 1 position on 26 Jul 2022, across 1 of the 583 legislative files tracked here.
What they argued
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Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.