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EPF

European Patients' Forum (EPF)

NGO · Belgium · EU Transparency Register 61911227368-75

3
positions filed
in the 326 files tracked
3
legislative files
of 326 tracked
3
with a full position paper
attached to a submission

Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.

Who they are

Among the 784 non-governmental organisations on this site, they rank #231 by legislative files engaged — a count of participation, not a measure of influence.

3.5
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
4
EP accreditations
as declared to the register
2011
in the register since

Declares membership of

  • EPF co-leads the EU4Health Civil Society Alliance in collaboration with EPHA (https://eu4health.eu/)
  • EPF participates in the AMR Stakeholder Network, an informal network of EU health organisations interested in the top…
  • EPF is a member of Civil Society Europe and SDG Watch Europe.
  • EPF participates in All Policies for Healthy Europe (AP4HE), an informal stakeholders’ group focusing on citizens’ he…
  • EPF participates in the EU Health Coalition, an information stakeholders’ group funded by EFPIA and focusing on key h…
  • EPF is a member of the AMR patient Group, managed by Health First Europe. More information is available here: https:/…
  • EPF is a member of the AMR Multistakeholder Partnership Platform. More information is available here: https://www.fao…
  • EPF is a member of the EU-JAMRAI 2 Stakeholder Forum. More information is available here: https://ec.europa.eu/info/f…
  • EPF also develops collaborations with various organisations representing different health stakeholders and within var…
  • We have memoranda of understanding with various organisations, such as IAPO (International Alliance of Patients Organ…
  • We also have informal relationships with other healthcare professionals’ organisations (e.g. Pharmaceutical Group of…
  • We also participate in the EFPIA Patient Think Tank, a quarterly meeting with the Pharmaceutical industry, which prom…
  • and 3 more

Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).

Register category
Non-governmental organisations
Head office
Brussels, Belgium

Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.

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Follow the files European Patients' Forum (EPF) engages with

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Their record over time

European Patients' Forum (EPF) filed 3 positions between 11 Jun 2025 and 18 Dec 2025, across 3 of the 326 legislative files tracked here, attaching a full position paper 3 times.

What they argued

Simplifying and reducing the burden of the rules on medical devices and in vitro diagnostic medical devices, and support of the European Medicines Agency for the expert panels on medical devices and the list of Union harmonisation legislationfiled 6 Oct 2025PDFsource

The European Patients Forum (EPF) welcomes the opportunity to provide feedback on the targeted revision of the EU regulations for medical devices and in vitro diagnostic devices. The revision should focus on reducing unnecessary administrative burdens that do not contribute to patient safety, information, or transparency, while contributing to more equitable access to safe and effective devices for all patients.

European Biotech Actfiled 11 Jun 2025PDFsource

The European Patients Forum (EPF) welcomes the opportunity to respond to the European Commissions Call for Evidence on the forthcoming EU Biotech Act. As an umbrella organisation representing patient organisations across Europe and across disease areas, EPF is calling for the EU Biotech Act to ensure a patient-centred health innovation agenda that places patients at the heart of this initiative.

European Health Data Space Board operationsfiled 18 Dec 2025PDFsource

The European Patients Forum (EPF) welcomes the publication of the first draft Implementing Act (IA) under the European Health Data Space (EHDS) and acknowledges the key role of the EHDS Board in ensuring coherent, trustworthy and effective implementation of the Regulation across the EU.

Looking for an argument rather than an organization? Search every submission for a phrase and see everyone who used it.

Turns up on the same files

Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.

Showing 5 of 47.

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Everything on this page comes from European Patients' Forum (EPF)’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.

Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.