EPODIN European Patient Organisation for Dysimmune Inflammatory Neuropathies welcomes the European Commission's proposal for an EU Biotech Act as a timely and ambitious initiative to strengthen Europe's biotechnology ecosystem, enhance its global competitiveness and ensure that scientific excellence translates into faster development, availability and equitable access to innovative medicines for all European…
EPO
European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN)
NGO · France · EU Transparency Register 551594935772-82
1
position filed
in the 326 files tracked
1
legislative file
of 326 tracked
0
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 326 consultation files tracked so far (29,503 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 784 non-governmental organisations on this site, they rank #576 by legislative files engaged — a count of participation, not a measure of influence.
3
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
2
EP accreditations
as declared to the register
2019
in the register since
Declares membership of
- Member of EURORDIS
- Member of the European network EURO-NMD
- Member of EFNA
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026).
- Register category
- Non-governmental organisations
- Registered as
- European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN)
- Head office
- LE POULIGUEN, France
Self-declared to the EU Transparency Register (snapshot 30 Aug 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN) filed 1 position on 5 Aug 2026, across 1 of the 326 legislative files tracked here.
What they argued
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Everything on this page comes from European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN)’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.