Health data is one of the most valuable resources for improving cancer prevention, diagnosis, treatment, and survivorship outcomes. Through its Digital Health Network and Research Policy Network, the European Cancer Organisation (ECO) has consistently highlighted that Europe can only fully harness the potential of cancer data through a framework that is sufficiently open to enable scientific progress while remaining…
European Cancer Organisation
NGO · Belgium · EU Transparency Register 51022176260-12
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,774 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1106 non-governmental organisations on this site, they rank #47 by legislative files engaged, a count of participation, not a measure of influence.
Declares membership of
- All.Can
- Biomedical Alliance in Europe
- European Chronic Disease Alliance
- EPHA – European Public Health Alliance
- FAIB - Federation of European and International Associations Established in Belgium
- UICC - Union for International Cancer Control
- FEAM - Federation of European Academies of Medicine
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026).
- Register category
- Non-governmental organisations
- Head office
- Brussels, Belgium
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
European Cancer Organisation filed 19 positions between 2 Feb 2021 and 4 Aug 2026, across 17 of the 665 legislative files tracked here, attaching a full position paper 13 times.
What they argued
The European Cancer Organisation (ECO), representing 41 Member Societies, 17 Associate Members, and 21 patient advocacy groups, brings together healthcare professionals, patient advocates, and policymakers to improve cancer care and policy across Europe.
The European Cancer Organisation is an umbrella federation of 41 European and international level societies working with 21 patient advocacy organisations to improve cancer care and outcomes in all countries. Pharmaceutical treatment is one of the mainstay treatment modalities in cancer care, and a field in which great progress has been achieved over many decades, making important contribution towards improved…
The European Cancer Organisation welcomes the forthcoming revision of the general pharmaceutical legislation. It is a chance to address a wide range of stakeholder concerns, and realise new opportunities in respect to patients’ access to outcome changing treatment.
Because AI systems used in healthcare must be trustworthy and because lives and patients’ outcomes depend on it, the European Cancer Organisation recognises the necessity of a strong pan European framework to ensure the trustworthiness of AI in healthcare.
The European Cancer Organisation welcomes the European Commissions proposal for a Biotech Act. The Act shows strong potential in supporting an environment in Europe in which research and innovation in fields such as new cancer treatments can flourish. The Act also identifies a number of barriers to the adoption of improved forms of treatment, with sensible proposals for how these can be alleviated.
Oncology is among the most data-intensive fields in medicine. From genomic sequencing and AI-assisted diagnostics to radiotherapy planning and cross-border clinical trial data sharing, oncology depends on digital systems that must be both interoperable and secure.
The European Health Data Space (EHDS) could be a game changer for the healthcare and research sectors. If properly implemented, EHDS represents the opportunity to bring much-needed efficiencies to healthcare, by facilitating health data sharing, use for primary and secondary purposes, improve efficiency in delivery of (cancer) care.
The European Cancer Organisation congratulates the European Commission for taking bold initiative to better harness the power for improvement that stronger coordination of health data at the European level can achieve. In this sense, the proposed European Health Data Space offers great potential.
The European Cancer Organisation (ECO) welcomes the opportunity to provide input on the future of research and technology infrastructures in Europe. Building and sustaining high-performing, interoperable infrastructures is vital for enabling equitable progress in cancer research and innovation, leading to improved patient outcomes across the European Union.
The European Cancer Organisation (ECO) welcomes the European Commission proposal on the Directive on ambient air quality and cleaner air for Europe. Clean air is vital for human health, and although the European Union (EU) has recorded worrying figures in this respect in recent years, ECO is pleased to note the joint efforts of the EU and national and local authorities to reduce the harmful impacts of air pollution…
The European Cancer Organisation (ECO) welcomes the opportunity to contribute to the evaluation and potential update of the Audiovisual Media Services Directive (AVMSD). Our organisation replies to this consultation from a public health and cancer prevention perspective.
The European Cancer Organisation (ECO) welcomes prospective legal commitment by the EU to eliminating asbestos exposure. This would be greatly aided by the suggested introduction of a legislative proposal which, among other items, could set guidelines in respect to screening and registration of asbestos in buildings.
The European Cancer Organisation supports the Commission’s proposal to reinforce the mandate of the European Centre for Disease Prevention and Control (ECDC). During the COVID-19 pandemic, the Agency has proved the value of its role in areas such as rapid information collection and sharing, guidance, and advice.
It is greatly welcomed that the mandate of the European Medicines Agency is proposed to be updated in light of the experience of the COVID-19 pandemic. Given the enormity of the pandemic’s impact, including for cancer patients across Europe, we cannot afford not to learn the lessons of 2020’s events rapidly and make necessary changes.
The European Cancer Organisation welcomes the opportunity to provide feedback to the consultation on Protecting Workers against Cancer-Causing Substances at Work and the ambition shown to protect workers from exposure to carcinogenic, mutagenic and reprotoxic substances .
The European Cancer Organisation supports the actions being taken by the European Commission to analyse structural shortcomings in how the EU conducts health cooperation, exposed in light of the 2020 COVID-19 pandemic experience.
The European Cancer Organisation (ECO) welcomes the opportunity to respond to the European Commissions consultation on future crisis and preparedness funding. ECO strongly support the establishment and long-term continuity of a robust EU funding stream dedicated to health system preparedness.
The European Cancer Organisation (ECO), representing a wide network of professional societies, patient organisations and experts across Europes cancer community, welcomes the opportunity to contribute to the European Commission consultation on its proposed Wine Package. ECO stresses the importance of consumer awareness regarding the health risks of alcohol, including its established role as a carcinogen.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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Everything on this page comes from European Cancer Organisation’s own submissions to the European Commission. We have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.