Access to affordable treatments for rare diseases remain a challenge in eye diseases.We applaud the European Commission's support to the retention & strengthening of Hospital Exemption (HE) as it contributes in reducing the current misalignment between public health priorities & industry outputs particularly in diseases with no commercial interest to industry.However its uneven implementation contributes to…
EAV
European Alliance for Vision Research and Ophthalmology
NGO · Belgium · EU Transparency Register 221589017973-83
2
positions filed
in the 583 files tracked
1
legislative file
of 583 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 964 non-governmental organisations on this site, they rank #587 by legislative files engaged — a count of participation, not a measure of influence.
0.2
declared lobbying FTE
self-declared
—
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2015
in the register since
Declares membership of
- Full member of HCPWP of EMA for 2025-2027 mandate
- https://www.ema.europa.eu/en/committees/working-parties-other-groups/chmp/healthcare-professionals-working-party
- HTA Stakeholder Network
- https://health.ec.europa.eu/latest-updates/health-technology-assessment-stakeholder-network-list-members-2023-05-05_en
- Ad hoc member of the Multi-stakeholder Platform Advisory Group of the ACT EU initiative
- https://accelerating-clinical-trials.europa.eu/our-work/multi-stakeholder-platform/msp-advisory-group-members_en
- Member of the Go-CAR-T Coalition
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Non-governmental organisations
- Registered as
- European Alliance For Vision Research and Ophthalmology (EU-EYE)
- Head office
- Firenze, Italy
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
European Alliance for Vision Research and Ophthalmology filed 2 positions between 26 Apr 2021 and 8 Nov 2023, across 1 of the 583 legislative files tracked here, attaching a full position paper 2 times.
2021 · 1 filed2023 · 1 filed
What they argued
1. The roadmap needs to consider, or at least explore with stakeholders, the benefits, particularly for small organisations, of a standardised mandatory model contractual agreement forconduct of clinical studies between Sponsor and site/healthcare facility conducting the study.
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Everything on this page comes from European Alliance for Vision Research and Ophthalmology’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.