The proposed Directive (COM (2023) 192) and the Regulation (COM (2023) 193) contain several important measures that can make the pharmaceutical framework patient-centred and fit for purpose however, some areas could be improved to enhance access to medicines for cancer patients.
AEC
Association of European Cancer Leagues (ECL)
NGO · Belgium · EU Transparency Register 19265592757-25
6
positions filed
in the 665 files tracked
5
legislative files
of 665 tracked
6
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,774 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1106 non-governmental organisations on this site, they rank #249 by legislative files engaged, a count of participation, not a measure of influence.
8.6
declared lobbying FTE
self-declared
€800K+
declared costs / yr (floor)
7
EP accreditations
as declared to the register
2009
in the register since
Declares membership of
- European Public Health Alliance (EPHA) →
- https://epha.org/
- Health and Environment Alliance (HEAL) →
- https://www.env-health.org/
- Cancer Prevention Europe (CPE)
- https://cancerpreventioneurope.iarc.fr/
- European Cancer Organisation (ECO)
- https://www.europeancancer.org/
- Smoke Free Partnership (SFP) Coalition Member
- https://www.smokefreepartnership.eu/
- Union for International Cancer Control (UICC) on ad-hoc basis (all our members are also members of UICC)
- https://www.uicc.org/
- and 5 more
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026).
- Register category
- Non-governmental organisations
- Registered as
- Association of European Cancer Leagues (ECL)
- Head office
- Brussels, Belgium
Self-declared to the EU Transparency Register (snapshot 14 Oct 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Association of European Cancer Leagues (ECL) filed 6 positions between 16 Dec 2020 and 20 Dec 2025, across 5 of the 665 legislative files tracked here, attaching a full position paper 6 times.
2020 · 1 filed2021 · 1 filed2022 · 1 filed2023 · 1 filed2025 · 2 filed
What they argued
ECL welcomes the opportunity to contribute to the revision of the general pharmaceutical legislation. Across the legislative changes in the health space, it is essential to remember that health is a public good and should not be discussed as a marketing item. ECL’s keywords: conditionalities, transparency, and cross-border collaborations.
Both medical and technological developments have led to the increased provision of cancer medicines on the market, making it possible for cancer patients to live longer with a better quality of life. However, currently, the only way to bring innovative cell and gene therapies to patients is via a commercial route, with extremely high prices.
The Association of European Cancer Leagues (ECL) welcomes the European Commission’s proposal to create a European Health Data Space (EHDS) to unleash the full potential of data cooperation across borders for the benefit and improvement of care, research, care and health policy.
The Association of European Cancer Leagues (ECL) welcomes the European Commissions call for evidence on the Audiovisual Media Services Directive (AVMSD) and strongly supports its revision. ECL urges the Commission to reject Option 1 (no change), arguing that the current AVMSD does not provide effective or evidence-aligned protection for children against harmful marketing practices in a rapidly evolving digital media…
The ECL Access to Medicines Task Force (A2M TF) welcomes the Commission’s initiative to seek a new legal framework to solve issues within current legislation on medicines for children and rare diseases. The A2M TF urges the Commission to prioritise the following problems: There are no approved treatments for 95% of rare diseases. This must change.
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
Showing 5 of 121.
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Everything on this page comes from Association of European Cancer Leagues (ECL)’s own submissions to the European Commission. We have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.