NGO · Spain
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts — staff, costs, accreditations — are not available for it.
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Asociación Hipofam filed 2 positions between 26 Dec 2020 and 12 Nov 2025, across 2 of the 583 legislative files tracked here.
Since Hipofam, we welcome the proposed changes and the willingness to improve access to and development of medicines for paediatric patients, and thus how improvements to the system of incentives for medicines for rare diseases. Although inclusion and reimbursement fall within the competence of the States, measures to improve fairness in access across the EU should be considered.
Filed in Spanish · English published by the European Commission
1Health as an EU priority The best way to safeguard public health is through a dedicated health programme at European level, with protected funding and building on the achievements of the EU4Health programme. 2. Integrating health and rare diseases into the ECF The European Competitiveness Fund (ECF) should explicitly include and adequately support public health and rare disease actions.
Filed in Spanish · English published by the European Commission
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Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers — not evidence of coordination, and we do not suggest any.
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