AELMHU, Asociación Española de Laboratorios de Medicamentos Huérfanos y Ultrahuérfanos, a non-profit organization that brings together 25 biotechnology and pharmaceutical companies committed to the discovery, research, development and commercialization of innovative therapies capable of improving the situation of patients living with rare and ultra-rare diseases, appreciates the opportunity to participate in this…
ANE
Asociación Española de Medicamentos Húerfanos y Ultrahuérfanos
Industry association · Spain · EU Transparency Register 429216742750-40
1
position filed
in the 583 files tracked
1
legislative file
of 583 tracked
1
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 583 consultation files tracked so far (42,224 submissions, mostly 2025–26), so an organization's real filing history is larger, not smaller.
Who they are
Among the 1365 trade and business associations on this site, they rank #1035 by legislative files engaged — a count of participation, not a measure of influence.
0.3
declared lobbying FTE
self-declared
€10K+
declared costs / yr (floor)
0
EP accreditations
as declared to the register
2021
in the register since
Declares membership of
- www.aelmhu.es
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026).
- Register category
- Trade and business associations
- Registered as
- Asociación Española de laboratorios Huérfanos y Ultrahuérfanos (AELMHU)
- Head office
- Barcelona, Spain
- EU office
- Madrid
Self-declared to the EU Transparency Register (snapshot 2 Sept 2026); cost bands are floors, not audited totals. Reused under Commission Decision 2011/833/EU.
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Their record over time
Asociación Española de Medicamentos Húerfanos y Ultrahuérfanos filed 1 position on 6 Nov 2023, across 1 of the 583 legislative files tracked here, attaching a full position paper 1 time.
What they argued
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Everything on this page comes from Asociación Española de Medicamentos Húerfanos y Ultrahuérfanos’s own submissions to the European Commission — we have added nothing and interpreted nothing. If something is wrong or out of date, email info@policyspeak.com and we will correct it. If you are an individual named in a record, our privacy policy sets out your rights to correction, objection and removal.
Quotes are verbatim from submissions published by the European Commission, trimmed to their opening passage and never summarized by a model. Organizations only, never individuals. Reused under Commission Decision 2011/833/EU; the European Commission is not liable for this reuse.