Explicit inclusion of European Reference Networks (ERNs) in the ECF is vital for health competitiveness and rare disease care The current proposal for the European Competitiveness Fund (ECF), specifically Chapter V (Articles 36 and 37) on Health, biotech, agriculture and bioeconomy, aligns perfectly with the mission of European Reference Networks (ERNs).
AU
Amsterdam UMC
Academic / research · Netherlands
not in the EU Transparency RegisterThis organization files on consultations without a register number, so its record here is built from its filings alone. Register facts (staff, costs, accreditations) are not available for it.
3
positions filed
in the 665 files tracked
3
legislative files
of 665 tracked
2
with a full position paper
attached to a submission
Counts here are a floor, never a total: they cover the 665 consultation files tracked so far (57,800 submissions, mostly 2021–26), so an organization's real filing history is larger, not smaller.
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Their record over time
Amsterdam UMC filed 3 positions between 18 May 2021 and 12 Nov 2025, across 3 of the 665 legislative files tracked here, attaching a full position paper 2 times.
2021 · 1 filed2023 · 1 filed2025 · 1 filed
What they argued
Amsterdam UMCs response to the European Commission's pharmaceutical legislation proposal centers on three crucial aspects: "Market Exclusivity," "Drug Repurposing," and "Hospital Exemption." We advocate for a recalibration of market exclusivity durations to foster competition, the active engagement of academia in drug repurposing, and the removal of constraints on ATMP manufacturing and delivery for improved patient…
Welcomes the fact that this will allow the manuals to be kept up to date, provided that the manufacturer/supplier stores them in a fixed digital place and is easily accessible to all parties (distributors and healthcare providers), as well as proper version management, so that customers can always have the latest version and quickly see the differences with older versions.
Filed in Dutch · English published by the European Commission
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Turns up on the same files
Organizations that also filed on at least two of the same consultations. A shared interest in the same dossiers, not evidence of coordination, and we do not suggest any.
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