EU rare disease action plan
- Stage
- Committee report adopted, reached 28 Sept 2026
- Procedure
- Legislative initiative report
- Rapporteur
- Nicolás González Casares (S&D)
- Last activity
- 28 Sept 2026
Where it stands
Latest: Committee report adopted, 28 Sept 2026. Next: Indicative plenary sitting date, 14 Dec 2026 (provisional).
- 10 Jul 2025
- Referred to committee
- 2 Mar 2026
- Committee report tabled
- 27 Mar 2026
- Committee amendments tabled
- 28 Sept 2026
- Committee report adopted
- 14 Dec 2026Scheduled
- Indicative plenary sitting date · provisional
Who is on it
The Parliament's rapporteurs, shadow rapporteurs and opinion rapporteurs currently on this file.
| Role | Name | Group | Country | Committee |
|---|---|---|---|---|
| Rapporteur | Nicolás González Casares | S&D | ES | SANT |
| Shadow rapporteur | Billy Kelleher | Renew | IE | SANT |
| Shadow rapporteur | Christine Anderson | ESN | DE | SANT |
| Shadow rapporteur | Elena Nevado del Campo | EPP | ES | SANT |
| Shadow rapporteur | Emmanouil Fragkos | ECR | EL | SANT |
| Shadow rapporteur | Giorgos Georgiou | The Left | CY | SANT |
| Shadow rapporteur | Marie-Luce BRASIER-CLAIN | PfE | FR | SANT |
| Shadow rapporteur | Nicolae ȘTEFĂNUȚĂ | Greens/EFA | RO | SANT |
Amendments
Tabled on 27 Mar 2026. The texts are in the amendment documents below.
By committee
- SANT720
By author
- Letizia Moratti142
- Dolors Montserrat135
- Elena Nevado del Campo135
- Adam Jarubas120
- Billy Kelleher115
- Stine Bosse110
- Vlad VASILE-VOICULESCU102
- Margarita de la Pisa Carrión95
- Marie-Luce BRASIER-CLAIN88
- Valérie Deloge88
ShowHide 20 more authors
- Aleksandar Nikolic87
- Viktória Ferenc79
- Kateřina Konečná72
- Laurent Castillo70
- Nicolás González Casares67
- Vytenis Povilas Andriukaitis67
- Nikos Papandreou58
- Jessica Polfjärd52
- Niels Flemming Hansen52
- Michalis Hadjipantela49
- Nicolae ȘTEFĂNUȚĂ · Greens/EFA41
- Ondřej Knotek41
- Tomislav Sokol23
- Emmanouil Fragkos21
- Galato Alexandraki21
- Geadis Geadi21
- András Tivadar Kulja17
- Catarina Martins14
- Giorgos Georgiou14
- Michele Picaro14
Amendments each member tabled or co-signed, among signers matched to our directory.
By article
- Paragraph 710
- Paragraph 117
- Recital K a (new)7
- Annex I – Part A – Recommendation 1 – paragraph 2 – indent 36
- Article 13 – point 16
- Article 17 – point 16
- Article 4 – point 16
- Paragraph 16
- Paragraph 146
- Paragraph 26
ShowHide 20 more provisions
- Paragraph 266
- Article 15 – point 25
- Article 3 – point 2 a (new)5
- Article 5 – point 15
- Paragraph 125
- Paragraph 135
- Paragraph 165
- Paragraph 245
- Paragraph 29 a (new)5
- Paragraph 45
- Paragraph 65
- Paragraph 85
- Paragraph 95
- Paragraph 9 a (new)5
- Recital C a (new)5
- Recital E a (new)5
- Annex I – Part A – Recommendation 1 – paragraph 14
- Annex I – Part A – Recommendation 1 – paragraph 2 – indent 14
- Annex I – Part A – Recommendation 2 – paragraph 2 – indent 34
- Annex I – Part A – Recommendation 2 – paragraph 2 – indent 44
Covers 163 of the 720 amendments.
Documents
Newest first. Each opens at its source.
- Report · PE785.192Parliament · 28 Sept 2026
- Amendments · PE786.802Parliament · 28 Sept 2026
- Amendments · PE786.805Parliament · 28 Sept 2026
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Sources: EP Legislative Observatory. Record as of 12 Oct 2026. Something wrong on this page? Report an error.
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